Announcement

Collapse

Facebook Forum Migration

Our forums have migrated to Facebook. If you are already an iMSN forum member you will be grandfathered in.

To access the Call Room and Marriage Matters, head to: https://m.facebook.com/groups/400932...eferrer=search

You can find the health and fitness forums here: https://m.facebook.com/groups/133538...eferrer=search

Private parenting discussions are here: https://m.facebook.com/groups/382903...eferrer=search

We look forward to seeing you on Facebook!
See more
See less

failure to thrive?

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • failure to thrive?

    This has been thrown out there to describe Josephine's progress... She basically has lost 1 oz since her birth weight, and she's over 1 month old now... It is firmly in the medical mystery phase right now, I guess. We started out all concerned with the jaundice issue, and that seemed to have somewhat abated by about 2 weeks. She still has high bili levels, and so is technically still jaundiced, but it doesn't need treatment and her bili numbers keep trending down. So, no real risk of brain damage due to jaundice there, which is a relief...

    So after we got over that hurdle, we started to look at her lackluster weight "gain" again. The highest she's ever been is 6 lb 6 oz, and she gets weighed *a lot*. The lowest she's been is 5 lb 9 oz, and that was the day after she was born... She's pretty much around 6 lb 3 oz, give or take 1 oz. We've tried lots of things. She's pretty much been either supplemented with breastmilk after every feed, then with formula after every feed, then no supplementing at all, then only formula for 24 hr... And nothing changes, which led her doctor to look at some other metabolic issues.

    So, yesterday we got lots of bloodwork. DH looked up the results and some of her numbers are totally way high, but that's b/c the "norms" are for adults. DH looked up the norms for 1 month olds, and she still has some elevated marks, but just in her poor little liver. That's to be expected, since she's still working through all that bilirubin... :huh:

    So far nothing really seems to explain the lack of weight gain. I'm sure I have enough milk, and I have enough calories in my milk. I nursed the twins exclusively and they each gained well over 1.5 lbs in the first month of life. I nursed the other kids too, and no one has had this issue...

    So, it's stressful, and I'm not posting much b/c I'm usually holding Miss Josie if I'm at the computer reading (I don't want to bother "hiding my identity" so don't get peeved if I don't post--- Y'all know it *kills* me to not comment!! I suck at one-handed typing though ).

    We go to the doctor almost every day for this or that. She's been to the doctor's about 24 days out of her life (better put, she's had like 8 days of *not* going to the doctor's.) And our doctor isn't exactly convenient, given that it's at least 25 minutes away and in traffic can be 1 hour or more... (one way.)

    I'm really really trying to keep things "normal" for the kiddos-- except Luke is watching way more TV than normal. The other ones still have their activities (lots of activities) but everyone is feeling the stress. Steven was crying today before school because he "wanted to stay home". Isabel has been having social problems with a mean girl in her class who used to be her bestest friend. Luke... what can I say. Thank God for his preschool. He loves it. Otherwise, he's in a super-strong willed 4 y.o. stage right now, and he's actually left our house out the front door without me knowing, for no apparent reason. It's not a street, we have a little front yard, but after that it's a pretty busy parking area... Kate is just wanting to talk talk talk about her many dramas, and I want to listen so that we keep connected, but somedays I'm just *barely* able to keep from telling her I have other things to worry about than who may or may not like one of her friends, not to mention the ultra-disturbing trend of all of her girlfriends "asking out" their crushes. Apparently boys don't "ask out" anymore and "girls have to do everything".

    (DH says, "that's not right! boys need to do the asking." Yes, he's a *bit* sexist; I say, "Yes, Girls have to do everything in middle school and life in general, but let's just not be "asking out" anyone now because YOU CAN'T have a boyfriend as per family rules!!")

    Stress... We are in survival mode here. I'm not even sure what this post is about! Just wanted to update.
    Peggy

    Aloha from paradise! And the other side of training!

  • #2
    Re: failure to thrive?

    Oh Peggy, I'm sorry to hear about your struggles. The Doctor appointments being so far must really suck so much time out of your day. Thanks for the update! Hang in there, and lots of hugs coming your way.
    Charlene~Married to an attending Ophtho Mudphud and Mom to 2 daughters

    Comment


    • #3
      Re: failure to thrive?

      Peggy-

      Are you going all the way to WRAMC or 'just' to NNMC? Either way, if you don't have to go during rush hour, just take Metro. It's infinitely more relaxing and you can grab lunch near both places if you want to try to make it more of a 'fun day'.

      I'm sure you both are worried and frustrated. We know most of the pediatricians at WR so if you want, just PM me.

      Jenn

      Comment


      • #4
        Re: failure to thrive?

        Oh Peggy, that is stress upon stress. I too hope that once the jaundice gets straightened out that she starts packing on the ounces.

        Comment


        • #5
          Re: failure to thrive?

          That sounds like a LOT, I'm glad you think the older kids are handling it ok. I wish you the same peace. I agree with Annie's assessment, have they thought maybe she's not metabolizing something you're eating well? I have a friend here with a little one that was "diagnosed" with failure to thrive. They cut all gluten from the families diet and she's doing MUCH better.

          I hope they get an answer for you soon.
          Wife to NSG out of training, mom to 2, 10 & 8, and a beagle with wings.

          Comment


          • #6
            Re: failure to thrive?

            Oh, I'm so sorry ... what a stressful situation! I wish I lived closer so I could help you out.

            I hope you get some answers very soon.

            ~Jane

            -Wife of urology attending.
            -SAHM to three great kiddos (2 boys, 1 girl!)

            Comment


            • #7
              Re: failure to thrive?

              Originally posted by cupcake
              Oh Peggy, that is stress upon stress. I too hope that once the jaundice gets straightened out that she starts packing on the ounces.
              I really hope it all resolves SOON!

              Comment


              • #8
                Re: failure to thrive?

                GAH! I want to help out and you're so far away. I hope that little miss starts gaining weight soon. You are a GREAT MOM, so hang in there. I know it is rough right now, but you will get through this. We're all here for you.

                Kelly
                In my dreams I run with the Kenyans.

                Comment


                • #9
                  Re: failure to thrive?

                  HUG! Hang in there! Her little body might just be working so hard on the bili now that she hasn't had time to grow!
                  Mom of 3, Veterinarian

                  Comment


                  • #10
                    Re: failure to thrive?



                    Take care of you!
                    Heidi, PA-S1 - wife to an orthopaedic surgeon, mom to Ryan, 17, and Alexia, 11.


                    Comment


                    • #11
                      Re: failure to thrive?

                      I just read this!

                      Peggy and your sweet baby:

                      I hope this is all figured out (and, hopefully, easily resolved) soon!
                      Who uses a machete to cut through red tape
                      With fingernails that shine like justice
                      And a voice that is dark like tinted glass

                      Comment


                      • #12
                        Re: failure to thrive?

                        I have no advice but lots of hugs for you and little Josie. It sounds like you are doing everything right.

                        Comment


                        • #13
                          Re: failure to thrive?

                          Oh Peggy!

                          I'm sure this has already been suggested, but Zoe didn't gain either and they put her on a higher calorie formula until the numbers started creeping up. I know that Josie only was a couple of weeks early, but...every little one is different.

                          It certainly has nothing to do with your breastmilk etc. We finally realized for Zoe that she was 1. not drinking enough at one time and 2. she was spitting up a lot more than we thought. We found this out by eventually weighing a wash cloth that we used to catch any spit ups during feeding.

                          Can you ask to get a higher cal formula and just give her that for awhile? I know you want to bfeed...I just wonder if you would feel more at ease if you could measure what she is taking in?

                          Kris
                          ~Mom of 5, married to an ID doc
                          ~A Rolling Stone Gathers No Moss

                          Comment


                          • #14
                            Re: failure to thrive?

                            Thanks all-- She gained some yesterday-- enough to make me think that Tuesday's measurement was off... She gained 5 oz in 24 hrs-- a huge gain for her. Today she was the same as yesterday, so holding steady but not losing...

                            She's so far being treated by her fam doc and a pediatrician. Hopefully she won't need to see the specilists! We're hoping her system kicks in, but I'll definitely ask about the high calorie formula if she isn't gaining tomorrow and see where to go from here!

                            Ultimately, upon every physical she is *very* healthy. Holds her head up, yells really loudly , and is just... normal.

                            :huh:

                            We're hanging in there-- I just want her to get fat and chubby ASAP!
                            Peggy

                            Aloha from paradise! And the other side of training!

                            Comment


                            • #15
                              Re: failure to thrive?

                              I missed this, until you bumped it with your update.

                              Where's the thudguy when you need him... Holy moly.

                              We're all thinking about you and rah-rah-ing for little Josie.
                              married to an anesthesia attending

                              Comment

                              Working...
                              X