OK, so now I've mentioned all of this to DH. He is adamant that this baby should have been transferred by now to a level 3 nursery and that the hospital isn't admitting that this is beyond their capabilities. I think this is the ER doc that tends to see patients transferred way late in the game coming out in him. If you need, PM me - he can make calls to help the transfer happen, and is more than willing to do so.
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I'm just catching up on all of this because I've been gone but DH says that Mayo's peds/peds ENT would be more then equipped to deal with this type of situation.
If you need anything at all please let me know - I'm always happy to help with new visitors to Rochester.
They are in my thoughts.Wife to NSG out of training, mom to 2, 10 & 8, and a beagle with wings.
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Tate is doing much better. According to my mom, he is starting to do all of the normal baby things (smile, make sounds, engage with his environment). Apparently he has been on antibiotics since Saturday afternoon because of the meconium. They took a chest xray on Saturday and it was a bit cloudy so they were thinking it was pneumonia from the meconium.
He has been maintaining his sats and will be scoped either today or tomorrow to confirm that it was swelling or if there is a blockage of some sort.
Pending that, he should be discharged with apnea and cardiac monitors. If he continues to have the prolonged startle reflex they will do another EEG that is several hours in duration.
My understanding is that Mayo is consulting on the case.Kris
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Originally posted by HouseofWool View PostPending that, he should be discharged with apnea and cardiac monitors. If he continues to have the prolonged startle reflex they will do another EEG that is several hours in duration.
My understanding is that Mayo is consulting on the case.
There are lots of sleep specialists-- I'm finding out. Only a tiny percentage can do surgeries to help solve sleep apnea, if it comes to that. There is a program in Wisconsin and in California where they are trained.
What a stressful time... I would be a total basket case to come home with monitors.
What do they think the seizures are caused from? I know they call it a "prolonged startle reflex", but is that even a *real* diagnosis? I've never even heard of that.Peggy
Aloha from paradise! And the other side of training!
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Peggy - he came home yesterday afternoon. From what I understand it is just one monitor that has sensors for both cardiac and apnea that is a band around his chest.
The final diagnosis was pneumonia. They are saying that the excess swelling in the nasal passage was due to both irritation from the meconium and from the suction.
They are saying that his nervous system was either overtaxed from the infection (which has responded beautifully to antibiotics) or is just immature, but that is a waiting game.
Either way, my sister is just thrilled to have the little guy home. She says he is eating nearly 3 oz of expressed breast milk at a feeding at just 6 days old!Kris
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Glad he is home. Not sure where this falls in her priority list, but I was able to transition Daegan to the breast (from the bottle) after he came home from the NICU. It took a good month. I also know of a (very dedicated) mom who was successful in about 5 months. I know the monitors are stressfull. Encourage kangaroo care for her and the baby and for dad and the baby. (skin to skin chest contact).Mom of 3, Veterinarian
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Michele, she is definately trying to transition back to breast. Apparently he was doing pretty well at it before he went into the NICU so there is hope. She mentioned that she wants it done by my DH's graduation because she doesn't want to schlep all of the pumping paraphenalia all the way across the state and then be stuck in a hotel with three other kids and pumping!Kris
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Yeah. Traveling with the pump sucks! Happy breast vibes her way!! And she has questions she's welcome to talk to me. ( though it was hard for me to talk to other moms at the time - so I understand if she doesn't want to)Mom of 3, Veterinarian
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