Testing for DS1

[MrsK]

It sounds like the principal has your son's best interest in mind. No child should be humiliated in front of his peers. The coach has probably used this technique before. Don't worry about what the rest of the IEP team thinks. They don't know the coach because they are new. Given their profession, I expect they would have little tolerance for such disciplinary techniques. They are there to serve your son's best interests as well and now they know the principal will hold them to it.

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[houseelf]

What kind of reprimand? I'm not sure I understand this story.

A Kindergartner at the school I taught at last year and my own DS urinated outside at his preschool. Little boys think its hilarious. Believe me, there is a lot of urine in kindergarten. This is why I slightly prefer first grade. :LOL: I know that there are some extenuating circumstances, but it is o.k. to tell them to put away their bird. It sounds like there is a lot more to that story.

[Thirteen]

After pulling records and personnel file, her disciplinary action was to make him read their handbooks. *eye roll* I went through all 57 pages of the incident report, and there was nothing insidious. While he could have handled it better, her response was overkill (as I suspected) and I wrote a letter stating we are fine and to basically leave the man alone. He has apologized to me so many times, I am past it all.

Where We Are:
DS1 has an upcoming appointment in Feb. with our developmental pediatrician (it's been a few years since his testing and write-ups with the pediatric neuropsychologist), and we want to see where he's at. Since I'm about 4 years into this process (and I have another kiddo that looks and quacks like a duck), I would say ADHD/SCD. He is more "quirky" than DS2, but his cognitive is on point as is processing speed and receptive language (on age level as of last semester! hallelujah!). I could always be wrong, but I really don't care about labels as long as my children get the services they need to be their best selves.
His school has recommended Saturday school 2x month to get extra help with some math concepts (Common Core, ya'll), and we have agreed on a trial run basis. If it leads to a hatred of learning, I'm going to have to back out.
We are trying some new things with testing and quizzes, since there are indicators that he is absentmindedly rushing through his work (hello, inattentive/impulsive combo). I have a meeting next week with his teacher and ESE teacher: if the new setup has improved his scores, we will then meet to amend the IEP for this testing necessity.

The search for a good child psych for CBT continues...

[Thirteen]

Testing for DS1

DS1 and DS2 had lab testing done to see if their current meds are the best for them.

The dev ped says based on results, both would do better on a different medicine. I’m a little nervous to switch so close to the beginning of school, but if it’s a better fit...
[MENTION=1498]MrsK[/MENTION], they want us to try Methadate cd or Focalin for best results.


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[MrsK]

K1 is on Focalin. It has a kick to it which is good for him. About 20 minutes after taking it, he’s super-focused. But he doesn’t eat anything at all when he’s using it and and crashes hard when it wears off. We took him off of the long-acting formula last week and we are experimenting with a short acting formula now. What sort of lab tests did you do?


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[Thirteen]

K1 is on Focalin. It has a kick to it which is good for him. About 20 minutes after taking it, he’s super-focused. But he doesn’t eat anything at all when he’s using it and and crashes hard when it wears off. We took him off of the long-acting formula last week and we are experimenting with a short acting formula now. What sort of lab tests did you do?


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The genetic test to check metabolism of medication, I believe? Dev Ped said the CD (which I believe is extended release). Have you had success with a immediate release small dose to help him with the crash in the evening, or would that make it worse? Trying to figure out what we might see with DS1 as side effects.


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[MrsK]

The genetic test to check metabolism of medication, I believe? Dev Ped said the CD (which I believe is extended release). Have you had success with a immediate release small dose to help him with the crash in the evening, or would that make it worse? Trying to figure out what we might see with DS1 as side effects.


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When initially adjusting to the extended release focalin, K1 would have this rebound in the late afternoon when it wore off where he’d have meltdowns, become emotional, etc. This leveled off after about 3 weeks. We did really well with the extended release for a long time and then we started having trouble in the later afternoon, after school. So, the doctor added a shorter acting Ritalin in the afternoon. The Ritalin is not as effective for him. Then, last spring, he started having trouble at school in the afternoons again. The doctor increased his dose because K1 was bigger and it was burning off faster. Over the summer, I noticed that the extended release was really only good for about 5 hours, not the full school day. So the doctor tried him on two extended release during the day but I couldn’t get him to eat between dosages. So, now we are on short acting 3x daily with an appointment scheduled for October with a developmental pediatrician at an ADHD clinic. We are still in the experimental phase of all of this.


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[Thirteen]

When initially adjusting to the extended release focalin, K1 would have this rebound in the late afternoon when it wore off where he’d have meltdowns, become emotional, etc. This leveled off after about 3 weeks. We did really well with the extended release for a long time and then we started having trouble in the later afternoon, after school. So, the doctor added a shorter acting Ritalin in the afternoon. The Ritalin is not as effective for him. Then, last spring, he started having trouble at school in the afternoons again. The doctor increased his dose because K1 was bigger and it was burning off faster. Over the summer, I noticed that the extended release was really only good for about 5 hours, not the full school day. So the doctor tried him on two extended release during the day but I couldn’t get him to eat between dosages. So, now we are on short acting 3x daily with an appointment scheduled for October with a developmental pediatrician at an ADHD clinic. We are still in the experimental phase of all of this.


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We are also fine tuning and experimenting. I have to say, it’s exhausting sometimes. I’m glad I am not alone in learning how to do this.


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[MrsK]

We are also fine tuning and experimenting. I have to say, it’s exhausting sometimes. I’m glad I am not alone in learning how to do this.


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I hate it. I don’t like how vague it all is. It’s like Alice in Wonderland nibbling off of different sides of the mushroom, experimenting with magic potions and cakes to see which will make him just right. And there are so many different options and combinations and I worry that some previously unknown side effect will impair his development later on. And now that school is starting, I won’t be able to observe him all day.



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