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Aging Parents/Grandparents

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  • #16
    One thing that has become clear is that we need to address the dementia immediately. With the myriad of other health issues, this was perhaps looked at as a "fete' a compli". After several years with a mediocre primary care we finally found an excellent geriatrician a few months ago, so I'm hopeful that if something can be done to slow its progression, it will be done. I’ll also suggest that my parents jump through the Medicare hoops now so that there’s no unsigned paperwork to get in the way of my grandmother’s comfort down the road. Thank you nmh, that was invaluable.

    My mother's experience as a social worker placing developmentally disabled clients in nursing homes when they "age out" of the residential schools where she's worked has soured her to the idea of putting anyone, especially family, there. Because of that though, she’s fairly knowledgeable about various alternatives. Unfortunately, my grandmother is very resistant to my parents' suggestions at this point. But so was my grandfather, initially. Eventually he was happy to stay at home with 2 wonderful home health aides that my mother hired. He expressed some guilt over “spending” my mother and aunt's “inheritance”, but having quality time together toward the end made it incredibly worthwhile. He passed in his own bed, his hand held by one of his aides, calling out my grandmother's name as though he was seeing her again for the first time since she passed, 20 years before that.

    Thank you, to those of who shared stories and offered guidance. It's unfortunate that so many of you have BTDT, but I do appreciate your heartfelt advice.

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    • #17
      Dana,

      I thought of a few more things today. But first, I apologize for my grumpy attitude about all of this. I am exhausted and overwhelmed by all we are trying to figure out right now and my crabby pants are getting a little tight.

      It sounds like your mom has a lot of experience with nursing homes so this may be nothing new, but you can compare nursing homes based on Medicare inspection reports here:
      http://www.medicare.gov/NHCompare/Inclu ... tatus=True

      It's not as helpful for assisted living, unless the assisted living place also has a nursing home on site. The nursing home report doesn't always reflect the assisted living in those cases (I'm finding).

      I thought of a program in Denver that might be a good fit for your grandma. It was started as a Medicaid waiver and there are some other similar programs around the country.

      Here is the Denver site to give you an idea:
      http://www.totallongtermcare.org/index.html

      Based on the "links" at the bottom of that page, I found:
      http://www.npaonline.org/custom/program ... asp?id=209

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