please help me brainstorm

[peggyfromwastate]

Oh Alison... Is there any way you can get in to GI sooner? I wouldn't want to dink around with prevacid... you guys really need a break here.

[MarissaNicole]

I'm so sorry to hear that things haven't improved. I cannot even imagine how hard that must be for you. You are doing all the right things, hang in there!

[alison]

What luck! She was up one time last night with me. As opposed to 7 times the previous night with dh.

We'll see how it goes today and tonight.

I would really like a more aggressive approach to this, but I have a feeling the stomach is not something to be aggressive with. But what do I know?

We'll get through this. There are far worse things out there! A little more sleep wouldn't hurt, though!

What luck! She was up one time last night with me. As opposed to 7 times the previous night with dh.

We'll see how it goes today and tonight.

I would really like a more aggressive approach to this, but I have a feeling the stomach is not something to be aggressive with. But what do I know?

We'll get through this. There are far worse things out there! A little more sleep wouldn't hurt, though!

I wish you were in Seattle! My cousin's BIL is a pediatric GI (and her other BIL is the head of pediatric surgery at University of Chicago, and her SIL is a pediatric ENT there .... so I've got you covered in your other cities!).

[alison]

I wish you were in Seattle! My cousin's BIL is a pediatric GI (and her other BIL is the head of pediatric surgery at University of Chicago, and her SIL is a pediatric ENT there .... so I've got you covered in your other cities!).

Wahh!!!

I want to give this a chance. We were told to wait 2 weeks to see changes with the Zantac. After a matter of super frustrating days, I called in to say that it wasn't working and we were either treating the wrong thing or treating the right thing with the wrong medication (somehow that makes sense in my own head). Dd seems to be doing better today - ever so slightly. So maybe the prevacid is helping? If she continues to do alright today, then I'm not going to call in the National GERD (Ped GI) quite yet. Hahahaha. One must have a little humor in all of this.

[peggyfromwastate]

Alison, they always try the medicine approach first. And the GI people will most likely want you to finish the 2 week course or whatever. BUT, I would still just want that appt made. I would want to get in there because so many times when I have gotten through the *lets try this* and let's try that* phase with my ped, and finally gotten referred to the specialist, the specialist has told me *you should have been in here to see me a long time ago.*

It can't hurt, honestly. If the ped GI thinks that it's reasonable to continue with the meds you're on for now, good. But they just might have some other ideas, too.



I'm not confrontational either, and I don't like to be a PITA IRL, but I guess I would just try to move on to the specialist sooner rather than later. If she does have severe enough reflux she'll need to be treated by a ped GI later on anyway.

[alison]

You're right, Peggy. I'm just in denial or not wanting to be a PITA. The thing with having a doctor spouse is that they REALLY don't want to be a PITA. So, I tread lightly, and it sucks. It really does. Because, what I would really want to do right now is hop on a flight with my dd and take her to the best f-ing GI at the U of C or wherever and stop pussy-footing with the minimum dose of this or that drug.

I hear you, feel the same way, and I'm going to have a heart to heart with dh.

[scrub-jay]

Not much to add here - except another

[HouseofWool]

Alison - I would make the appt with the GI. It can take forever to get in with a specialist, by which point, you will know if the 2 wk regimine of Prevacid is working. Or not. If the meds work, you can always cancel the appointment.

It is really hard to watch your kiddo be in pain.

[PrincessFiona]

Re: please help me brainstorm

Alison,

Will she self-feed those gerber biter biscuits? Again with Aidan here but he was happy to hold them and put them in his mouth. They dissolve slowly (and are messy) but this was a good way to get more calories in him.

I started this at 4 mo with pedi approval. I had friends who got wide eyed but I didn't care. I always watched and was careful that there weren't little pieces that he could choke on.

Aidan also ate more when he moved on to solids.

Hugs to you. I agree about getting an appt sooner rather than later Hopefully the pediatric GI can help.

Keep in mind that this is not your fault.

Kris


Sent from my iPhone using Tapatalk

[moonlight]

From one mommy to another with a reflux baby… I feel your pain. I’m sorry. I really hope the new meds continue to work.

FWIW I had a appointment today with a GI doctor (it seems I have developed diverticulitis. Oh yay.) and asked him about my baby seeing a Peds GI. He asked if she was losing weight. That’s a ‘no’ in our case. She’s 2 months old and 13+ pounds. Then he asked if she was eating good. Dd is also eating really well, 5-6oz at a time. He said that if she were losing weight and not eating right then she would defiantly need to be seen by a peds GI. It sounds like a specialists appointment might be in your future. I hope your hubby gets on board soon--- I’m sure he will once his sleep deprived brain has more than two minutes to think about a plan for her!!

[Sheherezade]

My vote is to nag for the appointment too.

FWIW, when I was on meds for my own (adult) GI issues, it took at least a week for the meds to start making a difference. I was ready to throw in the towel myself, but then they started working.

[Vanquisher]

I am so sorry this is happening, Alison. I agree with trying to put some watered down apple juice in a bottle for her. Hopefully she will like the taste of it and want more. I would also be for trying a bunch of different kinds of bottles.

I know she is still really little, but I think her need for calories outweighs the waiting for a while before giving her other things issue.

These are great:

http://www.amazon.com/NUBY-BPA-FREE-...3560225&sr=1-2

http://www.amazon.com/Boon-Squirt-Di...ef=pd_sim_ba_3

http://www.amazon.com/Kidz-Med-Pacif...3560453&sr=1-1

I would also take her to the pediatric GI sooner rather than later.

Sometimes, with your first baby it is hard to know when to be pushy. Alison, this is the time to be pushy. You are incredibly frustrated and tired, and your precious baby is losing weight. Make the appointment. If she's better by the time you have the appointment, cancel. Or, don't cancel. It might be good to have her established with a GI doc anyway.

Good luck and hugs!

[Sheherezade]

Sometimes, with your first baby it is hard to know when to be pushy. Alison, this is the time to be pushy.

Agreed. For some reason, the culture likes to ridicule hand-wringing moms and that makes us want to seem cool and controlled. STILL, a seasoned doc will tell you that nothing beats mother's intuition. If you think something is wrong, then something is wrong. Make a fuss and don't feel the least built guilty if it turns out to be nothing. This is definitely something I've learned over the years. Get loud.

Hope today is better. Hope you got a few hours sleep.

[HouseofWool]

Agreed. For some reason, the culture likes to ridicule hand-wringing moms and that makes us want to seem cool and controlled. STILL, a seasoned doc will tell you that nothing beats mother's intuition. If you think something is wrong, then something is wrong. Make a fuss and don't feel the least built guilty if it turns out to be nothing. This is definitely something I've learned over the years. Get loud.

Hope today is better. Hope you got a few hours sleep.

Yes, yes and yes. Push for what you feel is best and don't let your hubbie's fear of appearing pushy stop you.

I did that with Caleb after his stroke and regret it every. single. day.

You really are doing a fantastic job and I cannot imagine how stressful this is to you right now. Hang in there.