We had a horrible and unexpected experience at the pediatric neurologist last Friday. Our pedi was concerned about DD not rolling over (or grabbing her feet) and her overall poor muscle tone… and our slow progress at physical therapy. She referred us to Neurology just to make sure… I honestly thought they would say all was well and keep with PT until she can catch up. No.
First of all the doctor had the personality of a door knob. No big deal. But when she starts using the words “checking for Cerebral Palsy, Lets schedule a MRI, and lets send her to Duke for a helmet (for her flat head)” I started to freak out. I asked her ‘why’ three times and she said because of poor reflexes her in ankles and knees. I could tell she wasn’t telling me everything but I didn’t know what else to say other than to keep asking her “why are you suggesting this?”
Then they tried to get blood work. The nurse seemed clueless and clearly didn’t know what she was doing. One thing for sure- she was putting my child in a lot of pain. I asked her to stop and the bitchy attitude came out (hers, not mine).
The whole experience was awful.
DH was not able to go with me, but did call the doctor and spoke with her. Come to find out there was lots she wasn’t telling me. She basically isn’t terribly worried, but she does want to rule out these other problems that could be causing her to have “low tone.” I wish she would have phrased it that way when I was with her.
Something told me to not go to that appointment alone, but DH is beyond over worked. There was no way in the world he could have left the hospital even for 30 minutes last Friday. I didn’t want to reschedule the appointment that took nearly a month to get. <sigh>
First of all the doctor had the personality of a door knob. No big deal. But when she starts using the words “checking for Cerebral Palsy, Lets schedule a MRI, and lets send her to Duke for a helmet (for her flat head)” I started to freak out. I asked her ‘why’ three times and she said because of poor reflexes her in ankles and knees. I could tell she wasn’t telling me everything but I didn’t know what else to say other than to keep asking her “why are you suggesting this?”
Then they tried to get blood work. The nurse seemed clueless and clearly didn’t know what she was doing. One thing for sure- she was putting my child in a lot of pain. I asked her to stop and the bitchy attitude came out (hers, not mine).
The whole experience was awful.
DH was not able to go with me, but did call the doctor and spoke with her. Come to find out there was lots she wasn’t telling me. She basically isn’t terribly worried, but she does want to rule out these other problems that could be causing her to have “low tone.” I wish she would have phrased it that way when I was with her.
Something told me to not go to that appointment alone, but DH is beyond over worked. There was no way in the world he could have left the hospital even for 30 minutes last Friday. I didn’t want to reschedule the appointment that took nearly a month to get. <sigh>
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