Pediatric Neurology visit.

[MarissaNicole]

Just seeing this thread now, and just wanted to let you know I'm thinking of you and I'm so you have to deal with this stress. Please keep us posted.

[moonlight]

I think you guys are on the right track. I need to have a heart to heart with PT. The ladies there are very pushy. And I know they have to be. I'm just sick of being pushed and having to push Annabelle. I'd just love to have a week where I could hold and play with my baby (while she is still a baby) and not think in the back of my mind "you should be doing some PT right now."

Next week I'll talk to them... I'll let ya know how it goes.

[Thirteen]

No advice, just some hugs.
I'm thinking of you!

[moonlight]

Please keep us posted.

We have a short update. I didn't want to start a new thread.

I took the baby to follow up with the peds neurosurgeon (actually we see his PA but anyways...). After 5 weeks of wearing her helmet the flattening on the back side of her head has gone from 15 mm to 10 mm! Not so shabby! With the heat this summer I feel bad that she has to put up with the helmet. It seems like it's all worth it tho.

I did talk to PT and we've been bumped down to every-other-week. I walked in two weeks ago and said "You’re nice and all, but I'm really sick of coming up here" She was completely sympathetic. The homework for the past two weeks is very doable. I don't think she is doing anything "new" for the past 2+ months, but at least we aren't crying on a daily basis out of frustrations.

[Michele]

Yay! She is such a cutie!!!!

[ladymoreta]

Great news!!! And great job!

[MarissaNicole]

That all sounds great! You (and your daughter) are doing a wonderful job!

[v-girl]

That's great!!!

[scrub-jay]

What good news! Thanks for the update!

[fluffhead]

Glad things are looking up! What a relief that must be.